Both kids enjoyed spending Tuesday morning swimming in the hotel pool. We brought along an inflatable basketball hoop, and my cousin who lives in Chicago and his son - who is only a week older than Ian - came by the hotel and swam with us. Ian loved being lifted up to dunk the ball into the hoop, and Lydia couldn't get enough of jumping off the side of the pool into our arms. It was a really great morning.
After lunch, we had a little bit of time before we had to go to the hospital, and we happened upon a little candy store. We took the kids in and Lydia had quite the time looking at all the different candies. She wanted Jaw Breakers, but I found some "baby" gummy bears that were perfect for her. She watched excitedly as I scooped some into a bag and we had it weighed. She carried the bag around for hours after that, telling us all over and over "my candy". She didn't actually eat any of them until four hours later, when we were on our way home.
|Lydia with her beloved baby gummy bears.|
We arrived at the hospital a little before the appointment. Inside the entrance was a piano that was playing by itself. The keys were even moving while it played, and Ian was totally enthralled by this. We had to promise he could watch the piano on the way out to get him away from it and get to his appointment!
|Ian and the "magic" piano.|
I left the appointment a little disappointed that this doctor didn't offer us some great, new, third option that we didn't already know about. Both paths to correcting Ian's scoliosis have pros and cons. Waiting and doing spinal fusion means Ian will have to wear a plastic brace on his torso for another eight to ten years, but it is a one surgery procedure. VEPTR eliminates the need for the brace, but after the initial placement surgery Ian would need to have day surgery every 6 to 8 months to lengthen the rod. This would need to be continued until he is done with puberty, so depending on when he starts it, it could be eight to ten years of surgery for him before it is over. Wearing a plastic torso brace can be uncomfortable, inconvenient, and limiting - especially for an older child - but constant surgeries are, well, constant surgery. Neither option is a cake walk.
Bottom line, I'm glad we took the time to see this doctor and get a second opinion for Ian. We still don't know what path we will take, but now at least we can take what this doctor said back to Ian's usual ortho and discuss it with him. We want to do what's best for Ian - to get him the best outcome and give him the best quality of life possible.